Privacy Policy

Effective Date: September 30, 2026

Larimar Therapeutics, Inc. (“Larimar”, “we”, “our”, or “us”) respects your privacy and is committed to protecting the privacy of your personal information. When you access and use this Website, we will collect certain personal information about you that may be used to identify you, sometimes referred to as “personal data” or “personally identifiable information” (collectively, “Personal Information”).

Larimar is responsible for the Personal Information that we collect about you and for making decisions regarding its collection and use. We are also responsible for implementing reasonable measures designed to protect the Personal Information that we hold about you. This Privacy Policy (this “Policy”) explains how we collect, use, process, share, protect, and store your Personal Information when you use this Website (this “Website”), which has been created as part of an unbranded, non-promotional disease awareness campaign relating to Friedreich’s ataxia (“FA”). Also, where applicable privacy laws and/or regulations require that we handle your Personal Information in a manner that is different from that which is described herein, we shall comply with those laws and/or regulations as applicable.

IMPORTANT NOTICE: Certain subsets of Personal Information, such as information about a person’s health or medical status and “Location Data” (meaning information that identifies or allows inference of the geographic location of a person or device), may be considered sensitive and, therefore, require additional care under applicable law. Before providing any sensitive Personal Information to us through this Website, we urge you to carefully consider whether you are certain that you wish to disclose such sensitive Personal Information to us. If, in using this Website, you do provide sensitive Personal Information to us, you consent to our collection and use of it for the purposes and in the manner described in this Policy (hereinafter, any reference to “Personal Information” is to be considered inclusive of “sensitive” Personal Information).

By using this Website, you agree to the terms of this Policy. If you do not agree to all of the terms of this Policy, please do not use this Website.

1. Personal Information We Collect

When you interact with this Website, we may collect the following Personal Information about you:

  • Personal Information that you provide to us directly when you “sign up” to receive educational information, materials, updates, and other content related to this Website from Larimar via email, mail, or text message.
    • Your first and last name
    • Your email address
    • Your phone number
    • Your state or ZIP Code
    • If you are a US healthcare professional, your specialty and, at your option, your National Provider Identifier (NPI)
    • Depending upon which form you use to sign up, the fact that you are either:
      • A person who has been diagnosed with FA;
      • A caregiver for a person who has been diagnosed with FA; or
      • A healthcare professional practicing in the United States of America (“US”).

2. Cookies and Other Data Collection Technologies

This section explains how this Website uses cookies and similar tracking technologies. We use the term “Cookies” broadly to include cookies and similar technologies such as pixels, web beacons, tags, and log files.

A cookie is a small text file that is placed on your computer or other device when you visit a website. Cookies help us operate and improve this Website, understand how it is used, remember your preferences, and measure the effectiveness of this disease awareness campaign. Cookies are called “first-party” Cookies when they are placed directly by us, and “third-party” Cookies when they are placed by our service providers. Some Cookies are “session” Cookies, which expire when you close your browser, and others are “persistent” Cookies, which remain on your device until they expire or you delete them.

Cookie Categories

This Website uses the following categories of Cookies:

  • Strictly Necessary Cookies — These Cookies are required for this Website to function and cannot be switched off in our systems. They are usually set only in response to actions you take, such as setting your privacy preferences or completing a form. This Website cannot function properly without these Cookies.
  • Performance Cookies — These Cookies help us measure and improve the performance of this Website by counting visits and traffic sources and by showing us how visitors move through and interact with this Website. If you do not allow these Cookies, we will not know when you have visited this Website and will be less able to monitor and improve its performance.
  • Advertising Cookies — These Cookies may be set through this Website by us or by our advertising and media partners to help measure the effectiveness of our campaign’s activities and deliver content that may be relevant to visitors. They may collect information about your browsing activity across sites, and because this Website concerns a specific health condition, that information could be used to make inferences about your health. If you do not allow these Cookies, you will experience less relevant advertising and content related to campaign activities.

Analytics

We use analytics services to analyze how this Website is used. For example, we use Google Analytics to help us improve the user experience. Google Analytics may use Cookies to perform their services. To learn how Google Analytics collects and processes data, please visit “How Google uses data when you use our partners’ sites or apps” located at policies.google.com/technologies/partner-sites. If you would like to opt out of Google Analytics, you can install the Google Analytics Opt-out Browser Add-on available at tools.google.com/dlpage/gaoptout.

How to Control Cookies

When you first visit this Website, our Cookie Consent Banner will appear and prompt you to select either “Accept All Cookies,” by which you agree to our use of all Cookies, or “Customize Cookies,” which allows you to choose which categories of non-essential Cookies you wish to allow. Strictly necessary Cookies are always active and cannot be turned off because they are required for this Website to function. You can change or withdraw your consent at any time by clicking the “Cookie Settings” link in the footer of this Website, which reopens our cookie preference center where you can enable or disable each category of non-essential Cookies. Changing your preferences will not automatically remove Cookies that have already been set on your device. Most web browsers also allow you to control Cookies through your browser settings; however, if you disable certain Cookies, some or all of the features on this Website may not function properly or may become disabled. To learn more about cookies, including how to see what cookies have been set and how to manage or delete them, visit www.allaboutcookies.org.

3. How We Use Your Personal Information

We may use the Personal Information that we collect to:

  • Provide educational information, materials, updates, and other content related to the disease awareness campaign;
  • Communicate with you by email, text message, or mail (with your consent);
  • Improve this Website and its content;
  • Comply with legal and regulatory requirements; and
  • Protect against fraud, security threats, or misuse of this Website.

4. How We Share Your Personal Information

We may share your Personal Information only as follows:

  • With service providers who help us operate this Website and deliver communications (e.g., email service providers, mailing vendors, SMS text messaging platforms).
  • With affiliates and partners working with us on the disease awareness campaign, subject to confidentiality obligations.
  • For legal reasons, if required by law, regulation, legal process, or government request, or to protect our rights, safety, and/ or property.
  • In aggregated or de-identified form that cannot reasonably be used to identify you.

5. Your Choices

  • Email communications: You may unsubscribe at any time by clicking the “Unsubscribe” link located at the bottom of our emails.
  • Text messages: You may unsubscribe at any time by texting “UNSUBSCRIBE” in reply to our messages.
  • Cookies and tracking technologies: Our Cookie Consent Banner allows you to select “Accept All Cookies” or “Customize Cookies,” which lets you choose which categories of non-essential Cookies you wish to allow. You can change or withdraw your consent at any time by clicking the “Cookie Settings” link in the footer of this Website to reopen our cookie preference center, and you can also control Cookies through your browser settings. For full details about the Cookies we use and how to manage them—including how to opt out of Google Analytics—please see Section 2 (“Cookies and Other Data Collection Technologies”). If you disable certain Cookies, some or all of the features on this Website may not function properly or may become disabled.

6. Security

We have implemented reasonable and appropriate technical and organizational security measures to protect and safeguard your Personal Information from loss, misuse and unauthorized access, disclosure, alteration, and destruction, considering the risks involved and the nature of your Personal Information. We have also taken measures to maintain the ongoing confidentiality, integrity, and availability of the systems and services that process your Personal Information and will restore the availability and access to your Personal Information in a timely manner in the event of a physical or technical incident. Still, as no method of transmission over the Internet or electronic storage system is completely secure, we cannot guarantee absolute security. If you have questions about the security of your Personal Information, or if you have reason to believe the Personal Information that we hold about you is no longer secure, please contact us immediately at privacyinfo@larimartx.com.

7. Retention

We will retain your Personal Information only for as long as is reasonably deemed necessary in order to fulfill the purposes described in this Policy, unless a longer retention period is required or permitted by law.

8. Children’s Privacy

This Website is not directed to or intended for use by children. If you are under the age of majority in your place of residence, you may use this Website only with the consent of or under the supervision of your parent or legal guardian. Consistent with the requirements of the Children’s Online Privacy Protection Act (“COPPA”), if we learn that a child under the age of 13 has provided his/her Personal Information to us through this Website without first receiving his or her parent’s or legal guardian’s verified consent, we will use that Personal Information only to respond directly to that child (or his or her parent or legal guardian) to inform the child (or his or her parent or legal guardian) that he or she cannot use this Website, and subsequently, we will dispose of such Personal Information in accordance with this Policy.

If you believe Larimar may have received any Personal Information from or about a child under the age of 13, please contact us at privacyinfo@larimartx.com.

9. Visitors to this Website

The information and materials provided on and offered through this Website are intended for and currently available for use only by:

  • Individuals located in the United States of America (“US”) who are either living with FA or caring for someone with FA; and
  • Healthcare professionals practicing in the US.

However, we recognize that individuals from outside the US may visit this Website. If you are visiting from outside the US, please note that any Personal Information you provide through this Website will be processed in accordance with applicable US data privacy/protection laws and regulations, which may or may not require the same level of protection and security as those in the country where you are located.

10. Changes to This Policy

We may update this Policy from time to time. When we do, we will post the updated version on this page with a new “Effective Date”. Your continued use of this Website after changes are posted constitutes your acceptance of those changes.

11. Privacy Requests

You may contact us at privacyinfo@larimartx.com if you have questions about this Policy or would like to submit a request regarding Personal Information that Larimar maintains about you. We will review and respond to requests in accordance with applicable law.

12. Contact Us

If you have questions about this Policy or our data practices, please contact us at privacyinfo@larimartx.com.