Support & Resources
Living with Friedreich's ataxia (FA) can take an emotional and financial toll on both the person diagnosed and their family. The FA community is full of resources to help you and your family navigate living with FA.
Receiving an FA diagnosis is one part of your story
See how other people are living with FA and writing their next chapter.
Living under the constant burden of FA, I've learned that your mindset has so much influence on whether you fail or succeed at anything you do in life.
No person or thing can ever take your mindset from you!
Morgan, 37
Devoted wife and mother.
Dedicated ambassador.
Unstoppable spirit.
One thing most people don't realize about living with FA is that every day is a challenge
In the future, I hope researchers find a cure for FA. Even if the chances of this are slim, the best I can hope for is to
live a life worthy of myself.
Tony, 25
FA advocate. College graduate. Avid reader
I feel proud of myself for simply getting out of bed every morning and going about the day with a smile.
Megan, 26
Aspiring author.
Enthusiastic reader.
Disability advocate.
FA has changed my life plans, but I'm determined to get what I want out of my next chapter.\
My entire life, I have wanted to act in TV and film, and while FA thought it had me, it does not.
I have a story to tell and I will use my voice.
Dillon, 30
Mental health advocate.
Creative thinker.
Asopiring photographer.
One of my biggest accomplishments was getting married.
I knew at an early age what my future would look like,
and I never thought that I would find love.
Erin, 45
FARA ambassador.
Bookworm.
World traveler.
A helpful resource for your journey
Download the following brochure to help better understand FA and support conversations with a doctor.
Connect with the community
Get involved with the FA community by participating in fundraisers and events, becoming an advocate, and more.
The Friedreich’s Ataxia Research Alliance (FARA) is a nonprofit organization that offers a wide array of information, including everything you need to know about FA, research that is being conducted, how to get more involved with the community, and more.
The National Organization for Rare Disorders (NORD®)* is a nonprofit organization that provides trusted information, resources, and support for people living with rare diseases. It connects patients and families with advocacy opportunities, research updates, and programs that help build awareness and community.
The National Ataxia Foundation (NAF) is a nonprofit organization that focuses on improving the lives of those affected by ataxia. It offers information about the condition, updates on ongoing research, and ways to connect with others and get involved in education and advocacy efforts.
*NORD and the NORD logo are registered trademarks of the National Organization for Rare Disease. NORD is a registered 501(c)(3) charity.
